Fran's world ... and welcome to it! |
|
August 2008
Categories
Brad Cesmat Music New Season Skylights The Girls The Guys More 3TV Blogs
|
« My Mom. A Story in Three parts. Part I – A turn of Events : Pneumonia, Zip lining and Swimming with Crocodiles and sharks. |
Main
| The Mystery Tour - Temples and sliding into the Abyss »
I arrived back from Jamaica on Thursday at midnight. I was exhausted and went to sleep ready to face whatever challenge faced my mom and I, head on. Friday, Jan 25th 2008 Very smugly, Dr. Demeterio said, “ “It was lucky that your mom came back into ER that night. We wound up running a whole battery of tests.” (Of course why these tests weren’t done before remains a mystery.) She continued, “ We’ve discovered she has a lump under her left arm. We believe its cancer. That would explain her swelling. A biopsy is going to be done on Monday and then we’ll know for sure. Not sure what kind of cancer yet, but the puzzle pieces are adding up. We have her on a machine to drain fluid from her lungs. I’ve told your mother she may have cancer. Your mother is not strong; she won’t be able to take chemo. Be prepared for the worst.” “You told my mother! Why would you do that before the biopsy has been done? Do me a favor don’t be so quick to write my mother off. And while we’re at it. How is it that she is on a lung machine now having her fluids drained, and she wasn’t on one prior to leaving the hospital? She was back in ER within the hour. How is it that in a hour, fluid accumulated in her lungs?” Why wasn’t a chest x-ray done before you let her go? She said, “We were going to do a follow up x-ray, and she was reacting well to the antibiotics. We are doing all we can for your mother.” I was not feeling the love for this doctor at the moment. If this were a cartoon, she would be thrown off a cliff. My mom and I talked for a while. She was in pain. They had her on percoset; they also gave her a shot of Torodol. Mom said this was the worst week of her life so far…with all the tests. In my heart, I didn’t think my mom had cancer. After all she had been in the hospital originally from March 26th till Sept. 10th, surely if she had cancer, one of the many doctors would have spotted it before now. Plus, a chest CAT scan had been done in August and there were no signs. Dr. Demeterio came in the room…my mom immediately tensed up…I knew she didn’t like her. I mentioned to her that my mom looked dehydrated. She said, “That’s the least of your problems.” Before I left the hospital that day, I checked in with my mom’s former roommate, who had been moved to another floor. She witnessed along with her friend, my mom being forced to sign the discharge papers. I was furious and called the supervisor. At that moment however I had to make a decision. Are my energies going to be focused on what was done, or what I could do now to help my mom? I chose the later, figuring I could deal with the other matters after my mom was better. After I left the hospital I went into mission mode. I started calling all the doctors my mom had seen since March 26th and asking for copies of all her medical records. I knew it would take a few days for this information to be gathered and I wanted to have it on hand if anyone needed it to help my mom…I felt I was going to need this get a second opinion, and just try to see if anyone missed anything. I called my sister and told her what was happening. She threw up. It was going to be a long weekend.
At 12:50 pm, I spoke Dr. George, the oncologist for the fist time. She told me that my Mom complained of pains in bone, ribs and spine. So they did a bone scan. It shows she has metastic disease (which means it looks like cancer has spread.) She said my mom also has tumor markers in her blood. The normal CEA level is less than 5. My mom has 254. We’ll know more after the biopsy…but there is hope.” Because of the mass email, my friend Catherine decided to come to the hospital to visit my mom with her new boyfriend Ron. Ron and I clicked right away and we were making my mom and Catherine laugh with our banter. They brought my mom beautiful flowers. My mom told Catherine, “I like this guy, hold onto him.” Catherine smiled. My sister and my niece came up that night too. They visited with my mom for a while. My mom was surrounded by love. That night I thanked God for all my wonderful friends who were being so supportive. I also thanked God that even though we had a small family we had a strong one.
I didn’t’ want to cry, because I felt crying would mean I believed that she already had cancer. There is always hope. There are always miracles. Doctors have been known to be wrong. I sure hoped this was one of those times. Sunday, Jan 27th, 2008 Jeannie and Joey come to visit. Showed mom shark and zip lining DVD from Jamaica. She smiled, “I’m glad you told me about this AFTER you got back. I would have had to say more novenas.” Mom was in pain…on a scale of 1-10 she said it was a 10. She was now getting morphine shots for the pain. Monday, Jan 28th, 2008 While we were waiting for my mom to go to OR, my mom said to me. At 2:30 mom was taken down to OR so the biopsy on the lump under her arm could be done. Mom and I visualized that she was fine. Waiting to find out if someone has cancer is very nerve racking. I didn’t want to concentrate any thoughts on that. So for the next few hours, I tried to be productive. Went to medical records, had them fax things over to the doctor (since if they do it that way you don’t have to pay for them). Called a few people, read some magazines. At 4:43 my boyfriend, Steve called to see how I was doing. I cried. I called my sister. Then I called Spencer and Steve. I asked them all to come with me to tell my mother. Mom came out of OR around 7 PM. I was trying to stay strong. I wasn’t crying at the moment…but my eyes were tearing. “Stay strong Capo…believe there is a cure. After all dad had cancer and he lived for 4 more years.” When we went to leave that night my mom called me back to her bedside. She held my hand and said, "Why are you really crying?" I cried all night. Why didn't God hear my prayers? Tuesday, Jan 29th, 2008 Even though I know it’s important in life to be your own best cheerleader…I also realize the power of asking for help. So, I sent out another mass email. This time asking for any and all alternative treatments that people knew of. Since my mom wasn’t strong enough for Chemo, nor did she want it, we’d have to conquer this another way… I wasn’t going to wait for Wednesday’s results. I needed information now and I knew it would take me time to go through my crash course in Cancer. Over 455 emails came back. I didn’t realize so many people I knew had dealt with cancer in their lives. It was a real wake up call. To be able to handle everything I had to be organized and come up with a plan. I wanted to be by my mom’s side…but I knew at the moment I needed to be home gathering my tools. First I looked up definitions; Pneumonia, Reno failure, different types of cancer etc. Then, I got a loose-leaf notebook and divided it into 10 sections. As the information came in I would put it in the notebook and decide if I would try this approach or not. In 3 days I had over 300 pages of information. Below is how I divided the notebook and the things I found out. Hopefully they can be of help to those of you out there who are going through the same ordeal.
IMPORTANT CANCER INFO: Here’s how I divided the notebook: 2- MEDICAL RECORDS FROM HER PRIVATE DOCTOR 3- MEDICAL RECORDS FROM HUDSON VALLEY HOSPITAL 4- DAILY LOG OF EVENTS: Who I’m speaking to, results, who they tell me to contact etc. how mom’s feeling etc. 5- ALTERNATIVE TREATMENTS: A ton of suggestions came in: I settled on four treatments to try: OXYGENATED WATER. (Cancer cells cannot live in high oxygen environments.) www.toolsforwellness.com/oxygenated-water.html. B - NOVIT- A mineral preparation that comes from Poland. It is FDA approved, patent 1996, and won received the European Academy of Sciences award and was recommended by Pope John Paul II Over a thousand case tests with phenomenal results. C- MONAVIE – Functional beverage with 19 different fruits…main one being Brazilian Acai Berry…30 times the protective cancer potential than red wine. It’s an antioxidant that neutralized free radicals. (Friend Margaret gave us a bottle for my mom for free. Friend Linda Rohe also sells it.) Soap opera stars are using it. D- Omega XL product - works with inflammation. $49.95 comes from New Zealand and is 400 times more potent than flax seed. (gel cap) Healer Mary Blake sells it. (212) 724-4081 6- PEOPLE TO CALL: I wound up calling: • Sloan Kettering (http://mskcc.org) • Dr. Robert Schneider (914) 666-8976 (Oncologist Affiliated with Sloan and does integrative medicine, for a second opinion) Recommended to me by my friend Suzanne, through Agent Roger Paul. I called the Dr. and he got back to me with answers as quickly as I talked. (He said that was his goal too!) • National Cancer Society (800) 422-6237 (for list of hospitals) • AMERICAN CANCER SOCIETY Ken Koybayashi (http://www.kensheaven.com) Only takes referrals – works in NY. (Three separate people recommended him)
Cancer fighting foods: Avocados, carrots, chili peppers, jalapenos, figs, flax, garlic, grapefruits, red grapes, kale, licorice root, mushrooms, brazil nuts, oranges, lemons, papayas, raspberries, turmeric, rosemary, seaweed and other sea vegetables, soy products, sweet potatoes, green tea, black tea, tapioca, tomatoes and apricots. (The apricot seed - B17 - prevents and kills cancer. Tribes such as the Eskimos, the Hopi, the Navajo and the Hunzas, have B17 in their diet, are CANCER FREE.) Top 10 strategies: 9- Use enzymes to Kill Cancer – such as pancreatic enzymes.
Websites: SECTION 10- Hundreds of prayers and affirmations came in. I typed some up for my mom to say: “God is with me. I am healthy and whole in every way. I thank you God for the miracle that is happening now.” The saying that kept me centered was a Buddhist saying Healers: • Silent Unity. They have been around for over 115 years. The chapel holds a vigil and prays for you 24/7 for 30 days. They say a prayer with you over the phone and also send you a copy. www.silentunity.org (1-800-PRAY-NOW) • World ministry of Prayer (wmop.org) • Rabbi Harlig for my Jewish friends (www.ohelchabad.org) Armed with my notebook of Information I went into my mom’s hospital room confidently. “Look mom, there are tons of things we can do if you do have cancer!” At that moment, Dr. Demeterio walked in. My mom proudly said, “Look at all the information my daughter got on how to fight cancer…see.” See smiled, “Yeah well don’t believe everything you read…most of that stuff doesn’t work…stick to western medicine.” I wanted to smack her with the book, and prove her wrong. Wednesday, Jan. 30, 2008 At 8:38 AM Dr. Puchir called, “Fran I’m sorry to say her cancer is bad and it’s advanced, 4th stage, all over her body, adenocarinoma…(means cancer coming form the glands.)
The next call came form Dr. George the oncologist. That night I asked mom again. “Do you want chemo?” I left the room and cried. Should I be persuading her to try it? At 10 pm I left the hospital. Before I did my mom said, “Your dad touched me again today..this time he tapped my shoulder twice…he’s telling me it will be okay.” We both took that to mean that she was going to be cured. That night Steve said to me, “Your mom has all her facilities. She has made her decision not to have chemo. You have to respect that. It’s not the quantity of life, it’s the quality. You are doing all you can…no way you can do more. There is no better advocate than you. If it’s meant to be it’s God’s will.” I prayed to God to guide me.
That night in the hospital I had my mom take a shot of the Monivie juice. She had been throwing up all day and was barely eating but she was able to keep this down. I also gave her two of the Omega pills. I put a huge note on her wall. “NO SUGAR, NO WHITE FLOUR, ONLY DISTILLED WATER.” They all thought I was nuts. I was with Steve that night in the hospital. When I left the room my mom turned to Steve and said, "She is a really good daughter." Steve said, "Yes she is incredible, I would want her fighting for me." Friday, Feb 1st – Sunday, Feb. 3rd, 2008 The social worker wanted to release her to hospice, were she could live out the next few weeks. I They hospital said they lung tube and IV was coming out and she will be discharged. I told them I would do the IV at home and continue to drain the lungs otherwise she’d drown in the fluids, and since hospice and home care wouldn’t do it, I’d learn how. Dr. Gordon said she’d teach me how. To do this though we’d have to have one more trip to OR, to put in a Plurex Cathera - that would drain the left lung at home, and an IV port for access for dehydration in the chest. Could my mom withstand another operation? I asked her if she wanted these things put in. She whispered, “Yes if it means living.”
On Saturday…mom was having a good day. Fifteen friends and relatives piled into her room to see her. For three hours we talked, laughed and had a great time. We actually got yelled at by the nurses for making too much noise. Mom was alert and would smile when she could.
At one point my friend; Laz did a healing with my mom that made her feel peaceful and pain free for a few moments. There was a sign on the elevator door warning people of an outbreak in the hospital that was causing stomach pains, nausea and vomiting…Maybe this bug was doing it and not the cancer! The hospital was short staffed because nurses were out sick. On Sunday, my sister went to visit my mom; she pampered her with hand massages. That night my sister and I saw water droplets coming out of my mom’s arm. I called the nurse. She explained that since because she’s so swollen that the fluid has no other place to drain. I stayed up till 4 a.m. that night planning my next step. Praying to God to help her. Monday, February 4, 2008 At 9 AM I was at the hospital once again. Tuesday, February 5th 2008 Today was the day for mom to have the port IV and pluerx valve put in so we could take her home. She would have to go into OR again. Mom was already in a lot of pain, and it worried me if we should be doing this or not. With all this pain could her body take another surgery? I gave the options to mom. “If we don’t’ do this procedure and they send you home, your lungs will fill up and you will surely die. If we do, do it, you have a chance.” She whispered, “Do it.” The entire time she was on the gurney waiting to be operated on she kept saying, “Oh God please take this pain away. God please. Please God.” Sharon and I kept holding her hands. I’ve never seen her in such pain. She said her back was hurting. We kept shifting her position. Her entire back was swollen, looked like it would burst at any minute. It’s extremely hard to watch someone you love in so much pain. We kept asking for more pain relief for her…”In a few minutes…” We were once again told the risks of the surgery to mom. Sharon and I waited outside during the operation. It was taking a long time…hopefully nothing went wrong. We tried to reassure each other. When mom came out she looked exhausted and now she was even in more pain. “Oh God, what have we done!” Are we helping or prolonging the inevitable? After a few hours she went back upstairs. I was very nervous. I talked to mom. I was scared to ask her anything like, “Just in case you die…do you want to be resituated?” I wanted her to be positive.” My mom had told me when we filled out the health care proxy that she wanted to be resituated. She wanted every chance at life, but she stopped at being a vegetable. At this point I texted my son, Spencer. “Grandma doesn’t look good, you better come.” He left his night class. I called my boyfriend as well. It was now 8 PM. My mom kept asking for more morphine. She was in so much pain…all in the back where the tubes were. Frustrated, I drove to the local CVS and bought that roll on aspirin. I came back and put it on her back. It relieved the pain for about 20 minutes. Sharon and I were holding her hand and telling her how much we loved her, and all the things we remembered…I couldn’t hold it any more…I started to tear. Spencer came, we all gathered around her. All of a sudden I didn’t want to be the one in charge anymore. I didn’t like being the one on the health care proxy form. Now even though mom and I went over this together, I felt I was deciding her fate.” I asked her if she wanted us to say a prayer. She said, “Yes, just don’t make it too long.” We all laughed. The family in the bed next to moms was offering us comfort. I asked for a priest to come to give my mom her last rites just in case.
Spencer was bent over…”Hey grandma…I love you….”
We were all there except for my seven-year- old niece, Athena. Mom was brought down to intensive care. At this point, my downstairs neighbors, Wanda and Vanessa came. I let them in the room with her…. My mom told them she loved them. She was like a second grandmother to them also. They watched her and cared for her when I went out of town on gigs. We had become one family. We all were in the waiting room, taking turns being at my mom’s side. It was now 1 AM. I told everyone to go home…that I’d stay the night. Everyone left and I was in the waiting room. All of a sudden I said, “What am I doing out here? She needs to know she’s not alone.” The doctor was called in. He said, “You’re mother is dying. Last time…do you want us to resuscitate her?” I thought I had decided this upstairs. Again my mind raced. I called Spencer and Steve…”Come back to the hospital quick.” I was alone with mom for a moment…the doctor was waiting in the wings ready to act. I know how badly she wanted to live. I wanted to be her rock and support…but she was in so much pain…. the doctor said she was dying…do I believe him? People still live after doctors say that. What do I say to my mom who is now squeezing my hand. “I leaned over. “Mommy, listen to me. I know you wanted every chance at living, and there is nothing more I would want for you to spend the next 20 years with us…but you are in a lot of pain. You’re body has handled a lot. Please don’t hang on for us, hang on only if you need to. We’ll all take care of each other and be okay, if you are in too much pain…it’s okay to let go if you have to….don’t be scared. I love you so much Mommy. You taught me everything I know…and we all love you so much, Spencer, Sharon and Athena. But it’s okay to let go and be pain free if you have to.” Then all of a sudden…the heart monitor went off. The doctors pushed me out of the way. “You have to leave now.” My mom held up her hand for me to grab it… I went to hold her hand but I was pushed outside. “Mom, I’ll be right outside…I love you.” Sharon came in at that moment…”What happened to mom?” Through the glass window he watched. There was slit in the drawn curtain. Spencer had become an EMT to be able to help my mom in an emergency situation and now he stood outside.helpless. He wanted to watch to make sure they were trying everything. He said he needed to know. Sharon and I walked away for a moment. That aimless walk when you don’t know what to do. I went back to look as what was happening. She came back…and they were still working on her. I went into the waiting room…”Okay God…if you are going to take her…take her already…but for Gods sake if you’re not…don’t’ make her suffer…. just do what you have to do already.” I walked back out…the doctors were coming out of the room. My sister fell to the floor and started pounding it. My sister wanted to climb into the bed with her. She looked up at me…”I think Mommy is smiling.” I couldn’t feel her presence. It’s just her body that once housed her soul. I felt so empty inside. I wanted to feel her spirit near me, but I couldn’t. At that moment I both hated God and loved him. Hated him for taking her…loved him if she was out of pain. I sat in the lobby…”How in one weeks time did it go from, she’s got cancer to she’s dead? I didn’t even have time to get her any alternative help. Sharon stayed in the room with mom’s body for a half hour. We considered having her sedated. At that point…Steve came. It was around 3:10. My mom had died at 2:55 Am. Alberto, Dale and Athena came 15 minutes after my mom passed. Athena never got to say goodbye. We gathered my mom’s stuff and went back to our house. Sharon sat in her car crying. But this was different. My mom wanted to live. We only had one week to deal with it. I sat in the dark feeling so empty. Despite what he said…I couldn’t feel it…I wanted to believe it…in fact I always did believe in those things…but now I couldn’t move, I couldn’t talk, I couldn’t believe. How could we have been so wrong…we all had the gut feeling she would live…Dad even came to her and said, “It would be okay”…then it hit me…”Oh my…maybe my Dad meant her crossing over would be okay. Maybe he knew she would be scared to die and so he was letting her know he’d be waiting on the other side.” I was hoping that was the truth…but I didn’t know. All I knew was that the most important person in the world to me (Outside of my son) was gone. I could see I’d be crying myself to sleep for many nights to come.
|
|
|
Leave a comment